2 thoughts on “contact

  1. Mary Norby says:

    Hi Sue,
    I just read your2013 article “The invisible mom” after googling “When your disabled child isn’t invited.”
    Thank you for drawing attention to the isolation and hurt felt by parents of children with differences.
    I have a 28 year old son with Asperger’s Syndrome. He just moved into his own apartment–we are so proud of him. He drives and works full time.
    He often lacks common manners, and his conversation topics can be odd. Adulthood has, however, exposed a kind heart.
    We have a very typical 25 year old daughter who seems to emanate light wherever she goes. She is a joy to be around.
    It is the holidays. Hurtful holidays as I now call (and feel them.)
    My brother and his wife invited our daughter to their holiday party and my mom just asked for my daughter’s cell phone number to personally invite her to the family Christmas Eve dinner.
    Ouch.
    Has this ever happened to you?
    Thank you.

  2. sue robins says:

    Hi Mary – thank you so much for writing. Yes, sadly, I can say that I have some extended family members who are uncomfortable with my son with Down syndrome. This especially hurts a lot. I have tried to find peace in my heart to accept this, but it continues to be difficult. All I can do is surround my son with people who love him and try hard to forget the rest. xo.

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