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Chicken: The Movie
"After high school was done, my son started living his own life.” -a wise mom Aaron withdrew from his last year of high school on the...
Sue Robins
Sep 16, 20211 min read
165
4

Schools are reopening, but disabled children have been forgotten
ORIGINALLY PUBLISHED IN THE GLOBE AND MAIL SEPTEMBER 2, 2021 Any parent who has rushed their child to the hospital as they struggled to...
Sue Robins
Sep 5, 20213 min read
114
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Ending with a Whimper
My son Aaron has not been to in-person school since March 6, 2020, when the pandemic arrived. He was midway through Grade 11. He’s...
Sue Robins
Aug 24, 20215 min read
1,028
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Getting To Know You
To put the care back into health care, focus on relationships. To focus on relationships, build trust and mutual caring. To build trust...
Sue Robins
Aug 17, 20214 min read
123
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I Love You When You Are Mad
The other day, I overheard my son Aaron saying to our puppy Abby, "I love you no matter what." I do believe that Abby was being a turd at...
Sue Robins
Jul 24, 20213 min read
200
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Twenty days of radiation: A photo essay
If your heart is broken, make art with the little pieces. – Shane Koyczan I'm beyond thrilled that the Journal of Medical Imaging and...
Sue Robins
Jul 3, 20212 min read
104
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Explaining Bad Things
We did not celebrate Canada yesterday. Instead, we spent the day explaining to our son - who is 18 years old and has Down syndrome -...
Sue Robins
Jul 2, 20213 min read
89
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happy faces only: a commentary
happy faces only is a new book from author Karen Klak. I’ll show all my cards: Karen is my friend. I first met her at the Stollery...
Sue Robins
Jun 27, 20215 min read
131
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My Crystal Ball
My son Aaron is 18 years old. He imbibes in a beer at the pub where it is legal and is scrupulous about saving money to buy the latest...
Sue Robins
Jun 23, 20214 min read
263
1


RIP Patient Engagement
My son had his second COVID shot yesterday. I know that I am supposed to be thankful for every crumb thrown to my disabled child. I am...
Sue Robins
Jun 11, 20214 min read
926
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Our Collective Trauma
Four years ago today I was in the middle of cancer treatment. I never got over it. I never went back to normal. It was not a gift. In...
Sue Robins
May 28, 20211 min read
123
0


Do You Care About Disabled People Or Not?
I was recently on a panel for the Canadian Association for Health Services Policy and Research. The topic was an important one:...
Sue Robins
May 24, 20213 min read
97
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We Are All Perfectly Fine
“Please look after yourself. It is ok to have a good life.” As a nursing school drop-out who eventually was granted an English degree in...
Sue Robins
May 19, 20212 min read
343
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Mary Morgan's Obituary
My friend Mary Morgan died on April 13, 2021. Before she died, she lived. She definitely lived - a rich and bold life. She was loved by...
Sue Robins
May 3, 20213 min read
414
2


The Vaccine Roll-Out Gong Show
Canada’s slow and painful vaccine roll-out is not surprising to anyone who has been immersed in health care in this country as a patient,...
Sue Robins
Apr 23, 20216 min read
170
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Grace for the Storytellers
It is not secret that I believe in the power of storytelling in health care. I have been coaching patients, families and staff to craft...
Sue Robins
Apr 17, 20214 min read
225
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There Was Something About Mary
My dear friend Mary died yesterday. She had a MAiD (Medical Assistance in Dying) appointment and now she is gone. I met Mary at a...
Sue Robins
Apr 14, 20213 min read
244
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Big Hearted in a Pandemic
This pandemic has deeply affected those with Big Hearts. I’m struggling to write coherently in the midst of this crisis. I fear for my...
Sue Robins
Apr 7, 20213 min read
229
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Our Joy Today
My (former) little baby boy turns 18 years old today. I am not going to give a commentary about Down syndrome or the pandemic. We are...
Sue Robins
Mar 30, 20211 min read
834
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The Loss This Past Year
I have been attending various caregiver support groups to try to make sense of what’s happened this past year. Talking through my story...
Sue Robins
Mar 19, 20211 min read
116
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