Getting To Know You
To put the care back into health care, focus on relationships. To focus on relationships, build trust and mutual caring. To build trust...
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Sue Robins
Jul 24, 20213 min read
I Love You When You Are Mad
The other day, I overheard my son Aaron saying to our puppy Abby, "I love you no matter what." I do believe that Abby was being a turd at...
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Sue Robins
Jul 3, 20212 min read
Twenty days of radiation: A photo essay
If your heart is broken, make art with the little pieces. – Shane Koyczan I'm beyond thrilled that the Journal of Medical Imaging and...
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Sue Robins
Jul 2, 20213 min read
Explaining Bad Things
We did not celebrate Canada yesterday. Instead, we spent the day explaining to our son - who is 18 years old and has Down syndrome -...
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Sue Robins
Jun 27, 20215 min read
happy faces only: a commentary
happy faces only is a new book from author Karen Klak. I’ll show all my cards: Karen is my friend. I first met her at the Stollery...
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Sue Robins
Jun 23, 20214 min read
My Crystal Ball
My son Aaron is 18 years old. He imbibes in a beer at the pub where it is legal and is scrupulous about saving money to buy the latest...
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Sue Robins
Jun 11, 20214 min read
RIP Patient Engagement
My son had his second COVID shot yesterday. I know that I am supposed to be thankful for every crumb thrown to my disabled child. I am...
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Sue Robins
May 28, 20211 min read
Our Collective Trauma
Four years ago today I was in the middle of cancer treatment. I never got over it. I never went back to normal. It was not a gift. In...
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Sue Robins
May 24, 20213 min read
Do You Care About Disabled People Or Not?
I was recently on a panel for the Canadian Association for Health Services Policy and Research. The topic was an important one:...
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Sue Robins
May 19, 20212 min read
We Are All Perfectly Fine
“Please look after yourself. It is ok to have a good life.” As a nursing school drop-out who eventually was granted an English degree in...
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Sue Robins
May 3, 20213 min read
Mary Morgan's Obituary
My friend Mary Morgan died on April 13, 2021. Before she died, she lived. She definitely lived - a rich and bold life. She was loved by...
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Sue Robins
Apr 23, 20216 min read
The Vaccine Roll-Out Gong Show
Canada’s slow and painful vaccine roll-out is not surprising to anyone who has been immersed in health care in this country as a patient,...
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Sue Robins
Apr 17, 20214 min read
Grace for the Storytellers
It is not secret that I believe in the power of storytelling in health care. I have been coaching patients, families and staff to craft...
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Sue Robins
Apr 14, 20213 min read
There Was Something About Mary
My dear friend Mary died yesterday. She had a MAiD (Medical Assistance in Dying) appointment and now she is gone. I met Mary at a...
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Sue Robins
Apr 7, 20213 min read
Big Hearted in a Pandemic
This pandemic has deeply affected those with Big Hearts. I’m struggling to write coherently in the midst of this crisis. I fear for my...
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Sue Robins
Mar 30, 20211 min read
Our Joy Today
My (former) little baby boy turns 18 years old today. I am not going to give a commentary about Down syndrome or the pandemic. We are...
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Sue Robins
Mar 19, 20211 min read
The Loss This Past Year
I have been attending various caregiver support groups to try to make sense of what’s happened this past year. Talking through my story...
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Sue Robins
Mar 15, 20215 min read
Birds Art Life
It has been four years since my cancer diagnosis. In 2019 I published Bird's Eye View, my book about my cancer patient experience (among...
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Sue Robins
Mar 9, 20214 min read
Thirteen Ways to Be a Patient Ally
A while back, I was at a follow-up cancer appointment talking to an oncology resident in the clinic room. We were chatting about the...
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Sue Robins
Feb 8, 20218 min read
A Day In The Pandemic Life, Month 11
Our days revolve around my husband’s work-at-home schedule and our new pandemic puppy’s need to pee or poop. Mike (the husband)...
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