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Rebel Health: A Commentary
Susannah Fox has written a new book called Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care . Her book overlaps...
Sue Robins
Jan 204 min read
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Take a Chance on Me
Ella and Isaac holding their baby brother Aaron This essay was originally published in 2005 in the Globe and Mail. I gave birth to my...
Sue Robins
Jan 114 min read
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Six Calls to Action for Patient Advocates
I’ve been an advocate in health care for a long time. I first realized the care was being eroded from health care when I was a student...
Sue Robins
Jan 33 min read
150
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I Don’t Do Disability: A Commentary
I’ve read all the memoirs written by moms who have children with Down syndrome (including obviously my own) and I can report that Adelle...
Sue Robins
Nov 18, 20244 min read
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The Dice are Loaded
People tell me that American politics are none of my business. That’s not true. They say that health care isn’t political. That’s...
Sue Robins
Nov 6, 20243 min read
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Mama Bear Rears Her Head
My youngest son Aaron, who is 21 years old and has Down syndrome, had a long-awaited specialist appointment today. I’ll share my...
Sue Robins
Oct 31, 20243 min read
211
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Burnout: Patient-Advocate Style
Well is it dark enough? Can you see me? - My Skin by Natalie Merchant Moral injury, distress and burn-out does not only happen to...
Sue Robins
Aug 21, 20244 min read
188
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Help, Don't Harm (The Cancer Edition)
Lately I've been hearing a lot about cancer from: People being investigated for cancer. People who have a brand new diagnosis of cancer....
Sue Robins
Aug 6, 20244 min read
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Lessons from Down Under, Part 2 Limestone Coast Local Health Network
Early in July, I took three planes and travelled a total of 24 hours to get to the Mount Gambier site at Limestone Coast Local Health...
Sue Robins
Jul 18, 20242 min read
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Lessons from Down Under, Part 1 World Down Syndrome Congress
My husband, youngest son Aaron and I went on an impromptu 12-day trip to Australia in early July. Who spontaneously jumps on a 16-hour...
Sue Robins
Jul 17, 20245 min read
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The Truth About Our Health System
The Canadian health system is built on the myth of Medicare. The notion that health care is free in our country is, to be blunt, a lie....
Sue Robins
Jun 23, 20245 min read
172
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AI: The Four E’s from a Patient Perspective Notes from a Talk at e-Health 2024
These are my notes from a panel I was on with Dr. Kimberlyn McGrail, Dr. Devin Singh and Dr. Khaled El Emam, moderated by Dr. Mohamed...
Sue Robins
May 28, 20243 min read
103
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Feedback for Thee But Not for Me
This essay is a long time coming. Here is a not-so-eloquent description of my writing process. I get stuff stuck in my head. Then I...
Sue Robins
May 13, 20243 min read
127
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brother do you love me: A commentary
brother do you love me is an exquisite book about the relationship between two brothers. Co-authors Manni and Reuben Coe have crafted a...
Sue Robins
May 12, 20244 min read
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The Wisdom of Nurses: A commentary
Note: I’m fortunate enough to know authors Sara Fung and Amie Archibald-Varley, as I was a guest on their Gritty Nurse podcast in 2021...
Sue Robins
Apr 25, 20244 min read
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Oska Bright: A week of belonging
“I tell him I have value. Over and over and over.” -Jamie Hale, poet In early March, we had the privilege of accompanying our son Aaron...
Sue Robins
Mar 24, 20244 min read
333
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Cheers to All the Family Doctors
I nominated our family physician for an award last year. Sadly, she didn’t win this well-deserved recognition, but I made sure to send...
Sue Robins
Feb 21, 20243 min read
95
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Caregiving for Love
Taking care of another human being is the most honourable job on Earth. Caregiving is also devalued, unrecognized and unsupported. There...
Sue Robins
Feb 21, 20243 min read
273
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A Series on Patient Advocacy
This series of 4 essays was originally posted on LinkedIn, based on my Levels of Advocacy diagram for patient and family advocates. A....
Sue Robins
Feb 15, 202411 min read
84
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If You Build It and They Don’t Come: The Story of Give a Duck
Naively, when I began advocacy twenty years ago, I envisioned a cycle of quality improvement where things only got better. I never...
Sue Robins
Dec 28, 20235 min read
310
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