getting to maybe

sue robins

wellbehaved

Every so often, I get a fire in my belly that I cannot extinguish.  My guide to to the Revolution is the book Getting to Maybe.

This book is for anyone who has ever thought:  THIS IS NOT OK.  I NEED TO DO SOMETHING.

I re-read my dog-eared version of this book when I lobbied (along with four other families) our local children’s hospital to create a Family Council.  (It worked.  Over four years later, it is going strong).  I referred to Getting to Maybe when the Nurse Coordinator at our Down syndrome clinic was slated to be laid off, and, along with a group of awesome, equally outraged families, we created an advocacy campaign called All Kids Deserve Health Services.  (It worked.  The government reinstated her position).

I’m currently outraged that families who have children with Down syndrome can’t access public speech and language…

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