Sue Robins

Sue Robins is a writer and mom – and a consultant in the area of family centred care for pediatric health centres.

Sue believes in the power of story-telling to motivate, inspire and educate in the world of health care.  Her recent clients include SickKids Hospital in Toronto, Stollery Children’s Hospital and London Health Science Centre’s Children’s Hospital.

In the unpaid work world, Sue is the co-founder of the Edmonton Down Syndrome Society’s peer support program, and she was a Coordinator for six years.  She was also the chair of Canadian Family Advisory Network (CFAN) from 2008-2010, and previously held a position on a family council for a local hospital for four years.

She has spoken on several topics at local, national and international conferences including: The Value of Peer Support at the World Down Syndrome Congress in Dublin (2006); Stollery Pediatric Grand Rounds in 2010 (Partnering with your Pediatrician); Chief Medical Rounds at SickKids (Disclosing Diagnosis) and Meaningful Engagement of Families at the Consumers Reforming Health Conference in Australia (2011).

Sue has had two essays published in the Globe and Mail reflecting on having a child with a disability, and has recently spoken in the media about ethical considerations with prenatal testing.

In 2008, Sue participated in a four day intensive training seminar on family centred care with the Institute for Patient and Family Centered Care.

She has a Bachelor of Arts in English and a post-degree certificate in Health Care Administration.  Sue recently graduated from the Professional Communications program from Royal Roads University.

In Sue’s words:

I specialize in family centred care consulting.  

I facilitate conversations in health care about improving the patient and family experience.  I share inspiration and practical tips about patient and family centred care, through workshops, speaking engagements, and dialogues.  I also coach staff and families to share their own stories to educate and motivate positive change.

I am an accomplished speaker on a variety of health topics – Disclosing Diagnosis, Embedding Peer Support, Engaging Family Advisors, Meaningful Engagement of Families, The Value of Peer Support, Life with a Child with a Disability, Partnering with your Pediatrician and Sharing Family Stories to Educate Health Professionals.

I’m a freelance writer who focuses on health and wellness topics, and sharing staff and family stories.