I feel fortunate to be asked to speak at upcoming conferences about the patient and family perspective in the health system. I also write and co-own a communications company – but sharing stories to motive and inspire health professionals is one of my favourite things to do. It lights me up.
Coming up next week is the 6th International Conference Neonatal and Childhood Pulmonary Vascular Disease. I’m excited to share stories and tips about effective partnerships between health professionals and families who have a child with Down syndrome. I use quotes, and photos and absolutely no data. What I talk about is this:
It is only with the heart that one can see rightly; what is essential is invisible to the eye. - Antoine de Saint Exupéry




There’s been musical chairs in my world on the Internet. This website, 




